Time is of the essence for people suffering from systemic lupus. Yet, this disease has a reputation for being difficult to diagnose. Let alone manage. Lupus can affect many parts of the body, including the skin, joints, kidneys, lungs, and brain. For that reason, symptoms can vary. What’s more, symptoms can mimic or be mistaken …
A 2022 research paper by the Leiden neuropsychiatric Systemic Lupus Erythematosus (SLE) clinic found 65% of lupus patients have a psychiatric disorder. With the mental burden ranging from mild to severe. [1] Lupus is a long-term disease that affects the body and mind. Dealing with lupus can be hard and stressful, which can hurt a …
Living with Lupus: Navigating the Mental Health Challenges Read More »
Lupus is a long-term sickness that affects different parts of your body, including your eyes. Not all lupus patients will have issues with their eyes. But some will have trouble seeing, which can make their life harder. This article will explain the eye problems that can come with lupus and give some advice on how to …
Lupus Erythematosus and Your Eyes: What You Need to Know Read More »
So how is life with Lupus in 2023? Tiring, to say the least? In 2020, Lupus Europe did a survey of 4375 patients with physician-confirmed Systemic Lupus Erythematosus from 35 European countries. One key takeaway is that most patients struggle with fatigue more than any other symptom. With 85% of their respondents fighting fatigue each …
Can you believe that the longest a person has gone without sleep is 264 hours? That’s 11 days – and 24 minutes to be precise! Honest That would end me! Like many lupus patients, I often wake up in the morning still feeling tired. Most of the time this is due to waking in the …
Discover The Hidden Link You Need to Know Between Sleep and Lupus Read More »
Dry skin can be a frustrating symptom of Lupus… it can be itchy, uncomfortable, and unsightly. As I know first-hand, it can cause cracks in your skin. It can also make everyday activities such as showering and getting dressed, a painful experience. Besides, dry skin can be a sign you also have an underlying condition …
What causes autoimmune conditions such as systemic lupus is a question on every patient’s lips. Yet, a 2022 study published in Nature shows that autoimmune disorders like rheumatoid arthritis and systemic lupus may be the aftermath of the Black Death. This disease occurred long ago and inflicted sickness and death on many people. – Learn more about the …
Is Lupus The Unexpected Legacy Of The Black Plague Read More »
Sjogren’s syndrome is a health condition that was first described by a Swedish doctor named Henrik Sjögren in the early 1900s. Pronounced “SHOW-gren”, this condition causes dryness in different parts of the body, especially in the eyes and mouth. This dryness is due to inflammation in the glands that produce tears and saliva. Some people …
How Rare is Sjogren’s Syndrome and Lupus in the UK? Read More »
A priest gave me my last rites before my parents gave me a name. This early brush with death was a result of being born six-weeks premature with pneumonia. Meaning I spent my first two-weeks within a neonatal incubator to survive. Therefore, I was pumped full of antibiotics… the most common medication prescribed for infants …
3 Things You Need to Know about Your Gut Bacteria and Lupus Read More »
Minimising food waste is top of mind right now thanks to Putin’s war on Ukraine. Rightfully so, the public has concerns about the potential ramifications this war could have on our food supply chain. But even before the Russia-Ukraine War, given concerns about a rapidly growing population and hunger around the world, the Food and …
